The Power of Open Health Data: Impact, Representation, and Knowledge Diffusion

Abstract

Open health data generates a consistent ~10× indirect citation amplification beyond its direct users, a ratio that held across repositories spanning over two orders of magnitude in funding. The large differences in funding-normalized output partly reflect structural differences between retrospective databases and prospective cohorts. Low-cost access combined with intentional community building attracted globally diverse research communities with LMIC investigators in intellectual leadership positions, while a persistent gender gap in senior authorship across all repositories reflects disciplinary and structural inequities that data access policies alone cannot address. Future evaluations of open data investments should examine who is producing research, from where, in what positions, and whether their participation translates into locally relevant knowledge production.