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article · npj Dementia

The global landscape of online dementia resources

Abstract

Abstract This multi-country study systematically assessed 124 publicly accessible online dementia resources across 17 countries. Using an evidence-based taxonomy, the study assessed alignment with carer needs regarding disease knowledge, healthcare navigation, financial/legal support, and self-care. Findings reveal disparities in availability and quality, with limited internet infrastructure creates a barrier to online support in lower-connectivity settings. NGO-led provision dominated (68%), though quality varied (mean domain coverage: 47-96%). Financial and legal information was notably underrepresented, potentially reflecting localized regulatory complexity and a “clinical-first” development focus. Higher-scoring resources were associated with clearer governance and dedicated funding. Technical accessibility (WCAG 2.1 Level AA) was variable. The study identified adaptable delivery models, including digital integration and cultural adaptation. This research establishes a baseline for monitoring equity and offers policy recommendations for minimum standards, health-system integration, and hybrid delivery to support equitable access to dementia information and support globally.

Research topics

  • Health Literacy and Information Accessibility
  • Dementia and Cognitive Impairment Research
  • Mental Health and Patient Involvement

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DOI: 10.1038/s44400-026-00063-1

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