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Psychometric Assessment and Health Related Quality of Life of Children and adolescents With Cystic Fibrosis

Abstract

Abstract Background Cystic fibrosis (CF) is an exhausting and time-consuming disease that can interfere or impair typical daily life activities and social interactions. Aim and Objectives Evaluation of psychological aspects and Quality of life in cystic fibrosis patients. Subjects and Methods This was a cross sectional study, conducted at the Paediatric Chest Clinic, Children's Hospital, Ain Shams University on 31 patients with verified diagnosis of CF compared to 31 healthy children. Psychological assessment was done using Children depression Inventory (CDI) Scale, Spence Children’s Anxiety Scale, and The Pediatric Quality of Life (PedsQLTM) Scales. Result: CF patients experienced statistically significant higher levels of depression and anxiety than their healthy peers (p < 0.001; p = 0.001, respectively). There were no significant differences in PedsQLTM Scales between the CF patients and the healthy controls (p > 0.05). Conclusion This study is significantly important for revealing that psychiatric symptoms are prevalent among children with CF, which implies that annual symptom screening is justified.

Research topics

  • Cystic Fibrosis Research Advances
  • Childhood Cancer Survivors' Quality of Life
  • Delphi Technique in Research

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DOI: 10.1093/qjmed/hcae070.453

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