article · Cancer Medicine

“Nothing for Us Without Us”: A Mixed Methods Study Examining the Acceptability, Feasibility, and Impact of Involving Guardians of Children With Acute Lymphoblastic Leukemia in Tanzania as Public Contributors

Faraja Chiwanga
Pius M Temba
Abla Sami
Holly V R Sugg
Ida Österman Menander
P. Elena
Guardian Advisory Board
Ida Österman Menander
David A Richards
Louise von Essen
Louise von Essen

2026Open accessMakerere University

Abstract

Findings suggest GAB members' contribution was acceptable and feasible, and had an impact on both the research and GAB members themselves. Findings can inform how to meaningfully involve public contributors in LMICs.

Research topics

Children's Rights and Participation
Acute Lymphoblastic Leukemia research
Health Literacy and Information Accessibility

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DOI: 10.1002/cam4.71685

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